Personal stories

Doubly lucky NICU baby

An Invercargill family’s young son is a "miracle baby" twice over — conceived after years of  IVF, before being born prematurely.  The Moses family — mum Kathryn, dad Kereru and their baby, who is yet to be named — received a . . .  

Premature twins defy the odds to celebrate first birthdays

Read all about twins, Grace and Amelia celebrating their first birthday.  They arrived early after contracting twin-to-twin transfusion syndrome (TTTS) — a condition affecting about 10 per cent of identical twins in New Zealand.

Mischa - 42 weeks + 1 day. Our full term experience

I don’t see our experience in a negative way. Our journey wasn’t what we had planned but was a good reminder that instead of our usual worries about what cot or pram we were going to choose, all that really mattered was how lucky we were to have our baby alive and with us.

Riley - Intrauterine Growth Restricted (IUGR)

Riley’s neonatal journey started on June 8th 2018 when he was born at 34 weeks and 6 days gestation.  Early, due to being intrauterine growth restricted (IUGR) he weighed 1495grams and was 41cm long when born.

The journey of Jack

I learned that everyone’s journey is unique. Although at that moment, I wanted to read a success story of a baby born at 23 weeks, I know our story isn’t any more or less traumatic, unbelievable or miraculous than anyone else’s. Regardless of whether babies are born at 23 weeks or 42 weeks, every single baby is a true miracle and their gestation doesn’t indicate their journey, their outcome or their future. 

Lacey's emergency arrival

"I was so scared going into the neonatal unit that knew I nothing about, where people I had never met were looking after our baby girl. I had no idea what all the cords and tubes were for or what the machine beeping meant. The journey that we had through the NICU was tough and stressful"

A Christchurch night out for Neonatal

On January 10 2018, my sister in law Shannon had a routine midwife appointment which luckily my brother Daniel was home for due to his work being rained off. At this appointment the midwife raised serious concerns for Shannons wellbeing and the possibility she was suffering from preeclampsia. Shannon was rushed to hospital . . .

Our story - 12 years on

We noticed that there were other babies in the same room, except they were tiny. Our "wee" boy looked huge!  The nurses advised that they did not have any nappies that would fit him, or hats or booties. Man did we feel like we were in the wrong place! 

Neonatal November 2018

In 2017 we launched 'Neonatal November'.  One of the key drivers for this was to have a wider period of time to raise awarness of neonatal journeys.  In addition, we were conscious that there are many 'non-premature' neonatal journeys each year (ie the full-term babies with health issues and/or complications) and we wanted to widen beyond World Prematurity Day on November 17th.  

Harrison 21 years later

I learnt not to expect or compare his journey to that of any other full-term baby. He did everything in his own time.

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Thank you to The Neonatal Trust's Partners