Personal stories

Helping parents through a rocky start

I went through NICU with my wee boy Reuben, who’s now five and just started school. At 24 weeks, I went into spontaneous labour — we still have no idea why. It was a big shock and very stressful once he was here, with critical matters of life and death. I knew nothing; I didn’t even know babies survived at that gestation. . .   

Neonatal baby becomes neonatal researcher

I was born by emergency C-section at exactly 26 weeks gestation on April 25th 1995 at Wellington Hospital. I weighed approximately 900 grams, I had a head of auburn hair, and my eyes were still fused shut – I wasn’t quite ready to say hello to anyone yet . . . 

Sam's life by numbers

"I can’t stress enough that some days you will wonder if it will ever get easier and you will sometimes feel utterly powerless, but it WILL get better and your lives WILL return to “normal”. Make sure you take time for yourselves when you can and always accept help when offered. It can be a long journey but it can be very rewarding and will instil in you a sense of resilience you never thought possible"

Born at 23 weeks. A family's story of survival

In March 2013 Sarah and David Blaney were looking forward to meeting their first child, a girl, due in July. But at 23 weeks Sarah went into labour and baby Holly was born weighing just 640g- slightly bigger than a block of butter.
To other parents, the Blaneys say: Take it one day at a time. "You can't get too wound up about things because it's a long road. It's days and weeks and months and you can't freak out every day. You have to pace yourself through it.

Sharing a beautiful song

What you don't know, by Ryan Edwards

Neonatal journeys are often full of emotion. Whether the baby is early, or comes full-term with complications or health issues, parents are thrown into stressful situations a long way from what they had expected for the arrival of their precious new baby.  The beautiful song 'What you don't know' was written and sung by Ryan Edwards. Ryan wrote the song having known a family who had experienced a Neonatal journey, taking the perspective of a father when he is unable to get near his newborn child.

Introducing Neonatal November

For a number of years we've celebrated and supported World Prematurity Day (November 17).  However, we've been super conscious that there are many other neonatal journeys each year, ie the full-term babies with health issues and/or complications.  All babies needing an extra hand are cared for by the caring, patient and kind staff in the Neonatal Intensive Care Units (NICUs) and Special Care Baby Units (SCBUs). 

Supporter profiles, Dave Drury and Ryan Edwards

A consistent theme we encounter in our work is the very special people who look to support others. From those who give their time and support to the care of neonatal babies, the families themselves who go above and beyond for others, and the social profit space in general. We're keen to highlight some of these wonderful people with a regular interview piece. Learn more about the generous Dave Drury and Ryan Edwards of Points for Purpose - who are supporting The Neonatal Trust.

The early arrival of Alexis and Skylar

Any parent who has had a baby (or babies in our case) in NICU knows that you are a premmie parent for life. Our MoDi twin girls were born at 30 weeks weighing 1300gms and 841gms . . .

Welcome Dave Greenberg

The Neonatal Trust is privileged to announce that Dave Greenberg has joined as a Trustee. His knowledge of the social profit space and skills and experience in engagement, fundraising and health & safety space are very much welcomed - and will help us to enhance our support of neonatal families.

Amandas story

My story is not a recent one, in fact my daughter Amanda is now 30!  

Despite the fact it is now many years ago, the traumatic time that it was still remains fresh in my mind. I was a young Mum of 21, fit and healthy and certainly not expecting the rocky journey that lay ahead of me.

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Thank you to The Neonatal Trust's Partners