Personal stories

Sharing a beautiful song

What you don't know, by Ryan Edwards

Neonatal journeys are often full of emotion. Whether the baby is early, or comes full-term with complications or health issues, parents are thrown into stressful situations a long way from what they had expected for the arrival of their precious new baby.  The beautiful song 'What you don't know' was written and sung by Ryan Edwards. Ryan wrote the song having known a family who had experienced a Neonatal journey, taking the perspective of a father when he is unable to get near his newborn child.

Introducing Neonatal November

For a number of years we've celebrated and supported World Prematurity Day (November 17).  However, we've been super conscious that there are many other neonatal journeys each year, ie the full-term babies with health issues and/or complications.  All babies needing an extra hand are cared for by the caring, patient and kind staff in the Neonatal Intensive Care Units (NICUs) and Special Care Baby Units (SCBUs). 

Supporter profiles, Dave Drury and Ryan Edwards

A consistent theme we encounter in our work is the very special people who look to support others. From those who give their time and support to the care of neonatal babies, the families themselves who go above and beyond for others, and the social profit space in general. We're keen to highlight some of these wonderful people with a regular interview piece. Learn more about the generous Dave Drury and Ryan Edwards of Points for Purpose - who are supporting The Neonatal Trust.

The early arrival of Alexis and Skylar

Any parent who has had a baby (or babies in our case) in NICU knows that you are a premmie parent for life. Our MoDi twin girls were born at 30 weeks weighing 1300gms and 841gms . . .

Welcome Dave Greenberg

The Neonatal Trust is privileged to announce that Dave Greenberg has joined as a Trustee. His knowledge of the social profit space and skills and experience in engagement, fundraising and health & safety space are very much welcomed - and will help us to enhance our support of neonatal families.

Amandas story

My story is not a recent one, in fact my daughter Amanda is now 30!  

Despite the fact it is now many years ago, the traumatic time that it was still remains fresh in my mind. I was a young Mum of 21, fit and healthy and certainly not expecting the rocky journey that lay ahead of me.

An evening talking motivations

Last week we had the privilege of working with One Percent Collective and hosting an evening event in the wonder

Celebrating Volunteers

It's National Volunteer week 18 - 25 June 2017.  We want to celebrate and acknowledge the wonderful support we receive from volunteers that enables our support of neonatal families. From hundreds of knitters, to volunteers who support with baking, fundraising, writing & editing, sewing and raising awareness - we simply could not function without volunteers.

Volunteer profile: Sarah Stephens

A consistent theme we encounter is the special people involved (in the care of neonatal babies and the wider support of the families). We're extremely grateful to all those who provide their ideas, time, support and donations to The Neonatal Trust.

We want to highlight these great people and below do so and thank the wonderful Sarah Stephens who has helped us support neonatal families in a number of different ways . . .  

Ethan's early arrival and journey

Read this beautifully written story as told by Ethans mum Nicky.

"I have been looking back through the scrapbooks I made to document his journey and it’s bought the memories back so vividly.  There are so many things you do not know until you are there in this world, this group – this amazing special group that you suddenly become part of"

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Thank you to The Neonatal Trust's Partners